Anastasia Elise

Miracle Baby,

25 week preemie

 

 

 

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Summary of Anastasia's Story

First Signs of Trouble

Birth Story

FAQ

Feeding Tips for Preemies

Tips for Buying & Making Preemie Clothes

Tips on Preemie Development (including links to great toys)

Bringing Your Preemie Home

How to Help Parents of Preemies

Recommended Books About Preemies

Resources

 

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Resources for Parents of Preemies

Poor Prenatal Diagnosis:

Meet other parents going through a similar situation; also resources: http://www.benotafraid.net  

Elizabeth Ministry International Support: http://www.elizabethministry.com/

Miracle Angels (online support group): http://health.groups.yahoo.com/group/MiracleAngels/

Prenatal Partners for Life (support): http://www.prenatalpartnersforlife.org/

Child of Promise (support): http://www.achildofpromise.org/

Perinatal hospices: http://www.perinatalhospice.org/Perinatal_hospices.html

 

Bed Rest:

eBook on bed rest: http://www.kristinaseleshanko.com/SurvivngPregnancyBedRest.htm

Pregnancy Bed Rest: http://fpb.cwru.edu/Bedrest/Families/families.shtm

High Risk Pregnancy Support Group: http://health.groups.yahoo.com/group/highriskpregnancysupport

 

PROM:

PROM (Premature Rupture of Membranes, or early "waters" breaking): http://www.kanalen.org/prom

 

General Preemie Info:

Preemie Magazine: http://www.preemiemagazine.com

 
American Association for Premature Infants: http://www.aapi-online.org/
 
Neonatology on the Web: http://www.neonatology.org/
 
 
 
Tips for Friends & Family of Preemie Parents: http://members.aol.com/KBone91/mustread.html

Kangaroo Care: http://www.prematurity.org/baby/kangaroo.html

Breast Milk vs. Formula: http://kidshealth.org/parent/growth/feeding/breast_bottle_feeding.html

Breast Feeding: http://www.breast-feeding-information.com/feeling-guitly-about-breastfeeding.php

Breast Feeding Preemies: http://www.chsd.org/1291.cfm

Feeding Tips for Preemies: http://members.aol.com/lmwill262/page4/index.htm

Parent-2-Parent Feeding Issues Forum: http://www.parent-2-parent.com/forum/forumdisplay.php?f=91&order=desc

Feeding Problems Forum: http://health.groups.yahoo.com/group/feeding/

Sensory Issues: http://www.comeunity.com/premature/child/growth/feeding-hints.html

G-Tube & Eating Resources: http://www.bayarearealestatesales.com/gtube.resourcepage.htm

Blog post about alternative feeding techniques: http://lizmccarthy.blogspot.com/search?q=Dr.+Meeta+Patel+Slim+Jim

Breast Pumps for low income families: http://zacharywilliamsonmemorialfoundation.org/newsPress.html

Help for tube fed children: http://www.oley.org/index.html

 

Misc. Medical Issues:

Chronic Lung Disease (or BPD): http://ezinearticles.com/?Bronchopulmonary-Dysplasia-(BPD)-or-Chronic-Lung-Disease-in-Your-Premature-Baby&id=209828

PDA (heart murmur): http://www.pedisurg.com/PtEduc/PDA.htm

Apnea of Prematurity: http://www.kidshealth.org/parent/medical/lungs/aop.html

ROP: http://www.preemieparents.com/articles/prerop.htm

RSV: http://www.preemiecare.org/rsvfaq.htm

Reflux: http://www.infantreflux.org/Select_Treatments.htm and http://www.reflux.org/

Torticollis: http://www.torticolliskids.org

Ataxia: http://www.mdvu.org/library/pediatric/ataxia/ and http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/id57.html

Terminating troubled pregnancies (an RN describes the process): http://www.godandscience.org/doctrine/stanek.html

 

Charities for Preemies:

March of Dimes: http://www.marchofdimes.com/

 
Children's Miracle Network: http://www.cmn.org/

Makayla's Haven Foundation (help with family and funeral expenses): http://makaylas-haven.com/aboutus.html

 

 

Preemie Clothes:

Tips on buying appropriate clothes for preemies of all sizes: http://www.kristinaseleshanko.com/PreemieClothes.htm

Online sources for preemie clothes:

The Preemie Store

Preemies R Us

Itty Bitty Bundles

Nurture Place

Babyling

My Miracle Baby

M3 Preemie Products

 

Toy and Kid Item Recalls:

U.S Product Consumer Product Safety Commission

 

Other Blogs about Real Life Preemies:

Adventures in Preemie-Sitting (24 week preemie): http://ebbygator.blogspot.com

Alexander Daniel (24 week preemie): http://www.babiesonline.com/babies/a/alexdaniel

Alicia Blog (24 week preemie): http://callmealicia.blogspot.com

Bits and Pieces of Me (24 week preemie): http://www.bitsandpiecesofme.typepad.com

Blogging Hallie (23 week preemie): http://blogginghallie.blogspot.com

The Bolton Quintuplets: http://boltonquints.blogspot.com

Buying Mockingbirds: http://buyingmockingbirds.blogspot.com

Chasing Babies: http://www.chasingbabies.com

Cerebral Palsy Baby (28 week preemie): http://cerebralpalsybaby.blogspot.com

The Continuing Adventures of a Super Preemie (25 week preemie): http://snowplow.org/sarah/pers/Shoshanna

Day by Day (26 week preemie): http://www.kellarreid.com

Elizabeth Ann : http://busy-lizzy.blogspot.com

Eleanore and Adam (24 week preemies): http://www.ashtonjeffreykaden.blogspot.com

The Emma Report: http://www.emmareport.com

Furlough Family: http://www.furloughfamily.com

Impressions of a Preemie Mom (28 week preemie): http://www.impressionsbyleanne.blogspot.com

Isaac Samuel and Rachel Grace (23 week preemie): http://soniaandjong.blogspot.com

Kathyrn Elizabeth (25 week preemie): http://aliciam-kathrynelizabeth.blogspot.com

Life as a Preemie: http://dakota-rose.livejournal.com

Life in the NICU (23 week preemie): http://beaujacob.blogspot.com

Life is a Journey: http://justkima.blogspot.com

Lovvern Twins (25 week preemies): http://lovvorntwins.blogspot.com

Lucas Jeffrey Allen and Austin Lawrence Allen, born at 25 weeks: http://www.jeffandbeth.ca

Madd Babies: http://maddbabies.blogspot.com

A Mother's Journal (child born 12 weeks early): http://a-mothers-journal.blogspot.com

McCarthy Micro Preemie Blog: http://lizmccarthy.blogspot.com

Mirco Preemie Twins: http://www.micropreemietwins.blogspot.com

My Micro Preemie (26 week preemie): http://www.mymicropreemie.com

Miracles (Because They Do Happen) (24 week preemie): http://www.ashtonjeffreykaden.blogspot.com

Mono-Mono Preemie Twins (27 week preemies): http://momotwins-katy-mady.blogspot.com

Our Journey...Miracles Happen: http://nancybrown.wordpress.com

Our Miracle Boy (24 week preemie): http://www.birtchbaby.blogspot.com

Our Micro Preemie (25 week preemie): http://www.babiesonline.com/babies/e/elilittlebit

Preemie Beth (26 week preemie): http://preemiebeth.blogspot.com

The Preemie Experiment: http://www.thepreemieexperiment.blogspot.com

Quilao Triplets (25 week preemies): http://www.quilaotriplets.blogspot.com

Sydney Lou Who (24 week preemie): http://sydney-lou-who.livejournal.com

Tadlock Twins: http://tadlocktwins.livejournal.com

Tales of the Two Utes: http://tazmoz.blogspot.com

Tiny Baby: http://tinybaby.typepad.com

Tiny Blessings: http://tinyblessings.blogspot.com

Tyler Kenneth Brown (25 week preemie): http://kdbdallas.com/tyler

Twin Kemmets: http://twinkemmets.blogspot.com

 

 

 

 

 

 

"Miracles are a retelling in small letters

of the very same story

which is written across the whole world in letters

too large for some of us to see."

C. S. Lewis


 

 

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